Patient questionnaire

Question 1

Where did you hear of this questionnaire?

Question 2

Your baby is small, most likely because the blood flow through the placenta is compromised. There are several potential concerns about the baby. Can you rank the order of your concerns according to importance?

My baby may die even if monitored
My baby may have problems after delivery (for example breathing problems needing ventilation, needing drugs to control fits, special feeding through a tube)
My baby’s intelligence and development scores may be below average at two years of age
My baby may have cerebral palsy
As an adult, my baby may develop diabetes or high blood pressure

Question 3

A randomized study is the most common and probably most robust way of evaluating the effectiveness of an intervention in medicine, if there is uncertainty about what leads to the best outcome. In the study that we are designing, you would be allocated to timing of delivery based on random allocation (like tossing a coin) to one of two management strategies. Both strategies are widely used throughout Europe at the moment, but no-one knows which is better. One is based on fetal heart rate changes, the other on Doppler blood flow tests . Would you be willing to take part in such a study?

Question 4

At present we do not know if earlier delivery is able to improve outcomes for baby. If you agreed to taking part, would you be willing to agree to delivery perhaps as early as 32 weeks?

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